Ashtin update

I cannot be happy enough to say Ashtin is doing so much better!!! When he woke up at the hospital on Friday he seemed like his old self. The meds they gave him did great!! Do now he has different meds for home until we can get to the neurologist. He has done great all weekend and says that he feels better than he has in months! So happy to hear! So now we are waiting for our appointment at the neurologist and they will hopefully be able to give us answers on the head pains. Thank you so much for all your prayers.

My strong son

I sit here with Ashtin in the hospital while he sleeps and just cry... We were here yesterday and back today. They have been able to thankfully rule out any type of blood issues, leukemia, and growths in his head, but yet we still don't have a great answer. We do know that he is anemic and low iron, his white blood cell count remains low to show his low tolerance to fight off viruses and sickness, and the low sugars. So, the headaches still have no direct answer or fix. We are here today because of a rough night and they said he seemed dehydrated so he got fluids with a "migraine cocktail." Yes, that is their name for it!  They have run a few more tests today to check a few things that have slipped through the cracks, but no results yet. He had a breakdown at home this morning when I said the doctor said go back, but we discussed that we shouldn't need more blood tests due to how many have been done recently and he calmed down. I said we were going to focus on his head and he was happy to hear that. So what do they do when we get here, give him an IV. He got pretty mean with everyone and kept saying just fix my headaches and you don't need any more of my blood.... Poor kid. They during the first 5 min he sat up and said he couldn't breathe.... They came in and he had a reaction to how cold it was and it made his arm twitch and it scared him.. Now he is sleeping like an angel, and before he fell asleep he asked me to promise they would figure it out this time.... So I sit here and cry while he sleeps. I am so thankful that we have not found anything serious so far and a lot has been ruled out, and I can only imagine how those parents feel who spend more time in here with sick kiddos... But seeing you baby so upset and crying is so tough. I'm praying that everything looks good on tests today, yet also that we get answers soon and that my baby feels back to himself with no more headaches..... Here is a pic of him sleeping.

Fun weekend

We had such a great weekend and the kids had so much fun!! Friday night we had our cousins birthday party at Dor-Lo pizza in Ashland, Yummy!!!!!! Saturday we went up to cleveland for tge Piston car show. My brother was up there with his car club with their cars, so we hung out and he showed the boys around. The boys did the soap box derby and rock climbing wall. Yet my fav part of the weekend was spending Saturday night with Liz and her family. I miss her so much and our visits are too far between! I have so few people in my life that I trust and that have been with me through it all, and she has been there every step... No matter how long it's been, it never affects our friendship... The night of wine and talking went so fast and the kids played  all night. The kids have all grown up together. Sunday we got to see family and spent time with Debbie and Clover!
I wanted to upload pics, but it's not working.grrrr. I will post them later.

Ashtin update

Well, after a lot of doctor appointments, time at the hospital, blood tests, cat scan, we still don't have an exact answer.... Ashtin has now lost almost 13 pounds, and the headaches seem to be getting worse. He is now having pain in his arm and leg that does not show on the outside yet when she did a strength test his arm was weak. With his white blood count still low we are moving forward with some new testing in that direction. We are also going to be going to a neurologist in a few weeks and he is on migraine medication.
Taking him to school after his appoinent today was so hard. Here your child is crying due to a headache, yet has missed so much school... I think he is now scared because of all the doctors and tests, and is saying his stomach is upset..... It's breaking my heart..... Keep him in your prayers please!